Wednesday, July 20, 2011

Day of Life #16

We were hoping for better news this morning, but we'll take what we can get. We just finished up meeting with the doctors this morning, when we got here, the first thing we noticed is that Madeline was constantly shaking, or jittering. She was doing it once in a while yesterday, but it was pretty much constant since we walked in this morning, they believe it may be neurological, but will keep an eye on it.

Her urine output remains good, however she hasn't been processing her feeds, so we'll keep trying that today. Liver function, according to the labs, is slowly getting better. We're not sure how well the kidneys are doing because dialysis is still ongoing. They are getting more fluid out than they are putting in, which is what they want to be doing, however this morning they think she might be getting a little 'dry' so they are going to up her maintenance fluids some.

Not sure what to make of all this, but the whole neurological jitter thing has us upset this morning.

Thank you God for taking care of us and our baby. We pray that we can put our worries on to You and trust that You will do what is best.
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4 comments:

  1. ChristyJuly 20, 2011 at 10:27 AM

    As the sun rose today your baby Madeline was the first thought on my mind, I have been here before where you are the uncertianty, the waivering thoughts of WHY me why us why God. Trust in him he will get you thru even when you think there is no other way things can go wrong he will carry you.. I am a mom to a 15 year old who we were told several times that would never see the age of 1, 2, 10, 13, and now 15 we just had our last surgery of many and I so relate where you are. The fact is these children who are blessed at such an early age are the future leaders of people.. Madeline will go on for ever in hearts of many. The jitters and twitches are gods way of putting it all back together.. PRaying for you now harder than ever that you feel peace and comfort, From one complete stranger to another your story has touched me. Prayers..

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  2. RochelleJuly 20, 2011 at 11:21 AM

    As with Christine, my prayer partner and I lifted you and your family up early this morning.... proverbs 3:5,6 say that we are to trust in the Lord with all your heart and lean not on your own understanding; in all your ways acknowledge Him and He shall direct your paths. Rachel you and your Ron seem to be doing that and the Lord is with you and Madeline. His promise to the 3 of you is that He would not allow more to come your way then He knows you can handle. Keep seeking His face and hold onto His unchanging hand and we will continue to keep you before His thrown.

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  3. Noelle the dreamerJuly 20, 2011 at 1:04 PM

    Prayer with you always! May you find peace and comfort in God's love for Madeline!
    Hugs,

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  4. etdevlieJuly 20, 2011 at 6:48 PM

    We are praying for precious Madeline! Even my 7 year old is praying for her! Thanks again for the updates. Keep looking up to Him!
    Emily

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