We Will Bend but not break

Well.. you might be wondering why you haven't seen an update from us since the September given we were to have surgery on October 8th- The reason being that the surgery was postponed not once ..but twice now.

The Sunday before the original surgery date Madeline came down hard and fast with some kind of stomach bug that landed her in UH Rainbow hospital. She was admitted and the decision was made to postpone the surgery just to be safe. She was released that Wednesday and we had a new date of October 22nd (tomorrow!)

Obviously we were disappointed but understood the need to be cautious- It was difficult as Madeline's aunt had already planned a trip to come to assist with care and recovery for both myself and Madeline.. unfortunately she was unable to move the trip to accommodate the new date so she came for a visit as planned..

During the visit she and her husband became extremely ill and ended up in the er dehydrated and so sick- which resulted in the majority of their trip spent in bed and us away from them for fear of Madeline contracting something and delaying the surgery more

but alas...we are not in control of the universe and as it turns out Madeline came down with a cold last Thursday afternoon just after having final check in with her nephrologist- Despite our desperate attempts to heal her in a hurry (on lockdown in the house, tons of water, chicken noodle soup, humidifier, vicks vapo rub, essential oils) it has now turned into Monday and the congestion remains-

Soo....the Doctors and Surgeon and Anesthesiologist feel it is best to wait to perform the surgery for fear that this common cold could turn into something much worse after transplant and immuno suppressing meds.

As you can imagine this is a very up and down time for us and it can be quite frustrating- Not knowing when the surgery will be, how to keep madeline from catching sick again, if its ok to take her places like church and just 'out ' to get fresh air. We find ourselves second guessing everything and feeling like we just have to stay locked up in the house for fear she will get sick again. We also have fears that if we wait too long her kidneys could become worse to the point where she would have to be on dialysis which would be (another) surgery plus several days a week at the hospital receiving dialysis. Or she could catch an illness before her next scheduled surgery and postpone even more.. it is a bit overwhelming at the moment.

But - we are trying hard to remember that God has his timing for a reason and we don't always understand.. He says to Be still and know he is God and that he has it all under control ..and to let him handle it and not to let the stress consume us..

easier said than done right? :)

Here's some new Madeline pics that I love!