Spring Has Sprung and So Has Maddie!

Happy Spring everyone!

I cannot believe it has been 4 months since we have updated you on little Ms. Mad Belle! Wow time flies!

She is doing WONDERFUL  since her transplant- There have been bumps along the road but overall she is young happy and free :)

Medically speaking...

Madeline still has to be on a concoction of meds , she has adjustments here and there but has a very stringent med schedule which can be challenging at times. Timing and remembering to bring her meds everyhwere is very important in our schedule.

She sees her nephrologist every other week and she is stable in that respect .

Blood draws- Still every Monday morning- It's a pain but we are used to it!

Current Conditions..
The one complication Madeline has had since surgery is her struggle with CDIFF-This causes a great deal of diarrhea and has made life challenging for her potty training and for her babysitter. She feels fine but constant diarrhea can get a bit tricky. We had an appt with an Infectious Disease Doctor and we are going to put her on a 7 week trial of Vancomyacin and hope to knock this out of the park for Good!

Eating Habits...
Madeline is excelling in the eating department! She went from essentially nothing to having as much as one slice of pizza in a sitting! She is very particular about what she wants to eat (mostly junk in mom's opinion..pizza, organic hot dogs, cheese , pickles) but we try to be patient and celebrate the fact she is eating more and make her at least try a little bit of everything. Her babysitter reported this morning she ate scrambled eggs with Pepper and onion in them -How exciting!

Demeanor..
The terrible two's and 3's are inevitable and the force is strong with this one but we just like to think she has a strong will which will help her as an adult :) , Joking aside Madeline is happy, energetic, loves to socialize and explore and SING! She is constantly singing! I think like most kids her age she is in love with the Disney film FROZEN to which she affectionately refers to as 'Princess movie!" -She knows all the songs, she also loves Mickey Mouse/Minnie Mouse and the wiggles- We took her to see Mickey on stage and she still talks about Mickey coming to visit her at her house :)  We have been taking her to the pool quite often and she is loving that -Mom is starting swim lessons tomorrow in hopes that Madeline can start swim lessons too and they can learn together!

All this to say that we have been incredibly blessed with this gorgeous funny charismatic little girl and we are so thankful to GOD for allowing us to be her parents! Thanks to all of YOU who continue to stick with us and support us through the ups and downs we are truly BLESSED!!


As a way of giving back we are working to raise money for the National Kidney Foundation throught their annual Kidney Walk, June 8th 2014

We would like to raise 10k for this event- We are in the works to set up a fundraiser in May at Mitchell's Ice Cream in Ohio City where we will have a silent auction and a chinese auction -More details to come.

Would you consider supporting NKF to help educate others about Kidney Disease and to help families like ours?

Please check out our team page HERE -

Any level of support would be wonderful!

Check out the new pics of Maddie!

God Bless and thank you everyone!