Day of Life #12

0.4 ml/kg/day is her average output right now. Still low, but some progress, steroids seem to be helping, today we are looking for more output, maybe extibation. Her numbers are still a little out of whack, resting heart rate is low, blood pressure a bit on the high side, and she's getting close to needing another transfusion. She still looks a little pale, she's irritable, but she's also fighting every step of the way, just like her mom. I'm tired, a little irritable myself, and although the doctors and nurses mean well, they keep asking if we're okay or if there is anything they can do, some great news is about the only thing I'm really interested in. Progress is slow, but steady and doctors are trying to be upbeat about it, but I'm still a little reserved as this could just be some false progress as a result of the meds they are giving her. The fluids they are giving her are still very restricted and contain high concentrations of medication. I'm no doctor, but I still see a lot of pain and suffering in my little girl's face.

Mom and I are going to try to take a nap, say a few prayers, and maybe even eat some bacon.