Day Of Life #77-11 wks, more prayer requests

Apologies for the lengthy delay in writing-
Last week was a long week-
My husband had the honor as serving as pallbearer at Everett's funeral. We feel lucky to have met Everett and his family. We are very sad for all that has occurred, but like his parents are trying to find the good in what has come out of this. His parents have shared that many have told them how his life has touched them in some way, from doctor's to surgeon's, nurses and friends. He was a very special boy and we are thankful for the time he had here on earth. Please continue to pray for peace and healing for this family as they go through the grieving process.

We also ask that you say some fierce prayers for baby Adalee and her family. Last week Adalee had an episode and mom had to perform CPR on her until the ambulance arrived.She has been in the PICU since. Over the past few days she has coded several times and has fluid on her lungs for a reason doctors do not know. They believe she may be having reflux issues related to her coding. Pray for her perseverance and wisdom for the doctor's to determine what she needs to get better and to perform those actions flawlessly, pray for strength for mom, dad and for the entire family for what they are continually enduring- Pray for God's hand in all of this and for his healing and miracles.


Madeline-we visited with the nephrologist today and they are happy with her growth. Since leaving the hospital almost three weeks ago she went from 9lbs 15oz to 11lbs 1.5 oz. Her height at birth was 21.3 in and is now 22.5-so we are making some progress. Her Potassium remains on the high side- which means that her kidneys are not processing the potassium correctly. So the Nephrologist is having us use this medicine that will pull the potassium out of the breastmilk- it's called Kayexalate. We actually have to take a day's worth of milk, put the medicine in and wait for a 'sludge' to form at the bottom - that's the potassium - then we pour off the milk and give that to her. We will need to do that daily. The nephrologist also mentioned her Hemoglobin has been lower than it had been- It's still the normal range which is 10-12 but it's down from being at 15 - which was what it was at in the nicu. He wants to make sure it doesn't continue to drop -If it does continue she will have to take another medicine. In two weeks she will get her blood drawn again in two weeks and will test her Vitamin D and PTH levels (i forget what that stands for but they said it could be related to her potassium). I asked them today how many different medications she could be on that take on the role of her kidney before it's one too many and they said that she will remain on meds/meds will continue to be added as needed until the medicines no longer work- meaning she's taking meds but her levels are still off. We are hoping she will not have to be on too many more meds. Most important is her health and maintaining it- we will do whatever is necessary- it just can be a bit overwhelming at times- but we are doing our best.

Thanks to everyone for being so understanding. supportive. and diligent in prayers and assistance. We are so thankful.