Wednesday, July 13, 2011

Day of Life #9 Update

Not much to report tonight, no big changes since the morning with the exception of her sodium levels are now low (diluted) now. All the fluid building up in her is causing problems for the doctors trying to balance out her sugars, enzymes, and whatever else is found in the body and regulated by the kidneys and liver. I think the waiting for changes now is worse than the waiting we went through during the cooling therapy she was on when she first got here.

Getting hard to find some hope to hold on to. Keep fighting Maddie!

4 comments:

  1. Yes, keep fighting Madeline!! We continue to pray that you will soon rally!
    God speed little one!

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  2. I don't know where to start. My name is abby. I am corissa schroeders best friend. You have no idea who I am. But you have touched my life. I've been debating on posting for a few days. I look at this several times a day to see how precious madeline is doing. Its amazing how god can touch me through this. You probably had no idea that your situation has helped me put my life into perspective. And the trust you are holding onto with christ...so so amazing. That in itself is a blessing to the kingdom. There is a crown in heaven waiting for people like you. I'm sure I can have no idea what your going through. I look at it and I have no idea how I would handle all of this. But christ has applied his grace on you and you can walk this road out like no one else. He made you to walk this road....as close to him as possible. And I believe you two are two of the strongest people I have seen. I'm so glad you love jesus and can lean on him. That blesses my heart each time I think about all this. He will have glory one way or the other and I know you two are going to give it to him. You're awesome. I don't know how people make it through without him. Keep hangin in there. Madeline, your tough little girl! Resiliant is the word that keeps coming to me. Resiliant. God will always be enough for you. God bless.

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  3. Thanks for sharing abby! It is encouragement to us to have so many people behind us! We have received several notes this morning that have given us some energy to push on and stay positive! Thank you for yours~and God Bless!

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  4. There is only one set of footprints in the sand...I pray you can feel his love carrying all of you! There are so many special angels craddling Maddie right now, find peace in knowing GOD has a special place for children here on Earth and in Heaven! Hold on to her little fingers and toes and keep talking to her, she knows your love!
    All our Love and Prayers,
    The Shaffer's

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